Thursday, March 8, 2012

Hyperbaric Oxygen Therapy - Week 6

Week 6 of Hyperbaric Oxygen Therapy is nearly over and only two more weeks left - whoo hoo!!!  Dan and I are convinced we have seen a difference in Finn and most of it is hard to explain, but he seems more alert, his reaction time seems faster, and he is definitely saying more words.  We have started researching the "chambers" to see if it makes sense to buy one - I just need to figure out how I'm going to fit it in with the home decor LOL.

I am amazed and brought to tears every day with new words that Finn is saying.  He is definitely over 100 spontaneous words now and I just can't wait to see where we can go from here.  Some new ones are "I'm ready," "squirrel," and "Henry (as in the green engine)." The pronunciation isn't ever perfect, but its close enough that I know what he is saying!

Unfortunately, Finn probably has an impacted sinus infection and we are out of his Tobramyacin that you can only get from a special pharmacy.  But we have a wonderful ENT that called it in and we should get the new supply tomorrow and can start treatments again.  Tobramyacin is an antibiotic used on cystic fibrosis patients.  Finn does not have cystic fibrosis that we know of (Finn does not sweat and the proper test for CF is a sweat test), but his sinuses act in a similar manner.  I am hoping once we give him a full dose of treatments it will clear it up.  Even after having complete sinus surgery, we still have problems with his sinuses and are hoping he does not have to have another surgery. 

We are waiting on some blood work to come back from last week that will let us know how is immune system is doing.  We get this blood work done fairly often.  Some vaccinations that Finn has received don't take effect and this blood work will tell us if we need to get him re vaccinated. 

Overall, he is doing great.  We have a slew of doctor apts coming up: eye doctor to monitor his hydrocephalus (the eyes are the windows to the brain), Shriners for orthopedics, Allergy/Immunology, and ENT follow up.  Not to mention his quarterly audiology apt and I really need to get him back to the dentist but have been avoiding it as I know we need to seal his teeth and I think we will have to sedate him for it - yuck!

I'm definitely ready for Finn's spring break.  I miss the little guy during the day.  Especially now that it is gorgeous out and our pool is up to over 80 degrees!

Here is a picture of Finn practicing smiling for school picture day :)  Of course, Camila had to sneak in.

1 comment:

  1. Yay Finn! A "chamber" would be a design dilemna for sure!