Wednesday, December 19, 2012


I don't know exactly what is going on with my little man's brain, but it is working hard and in places it most likely never worked.  Every day, his is doing something new and doing something new every day is new.  I know this doesn't sound extraordinary to most parents of 4 year old boys, but it is to those who know Finnley. The fact he is talking using more then just a couple of words is in itself amazing.

Finnley used his first adjective this weekend.  He said, "I want red game."  Finn's communication is becoming more and more independent.  At school he got his first check (well, actually it said "some" but close to a check) in the box by "communicated independently with adults."  What progress!!!

It is crazy to think that Finn didn't start walking until nearly 2 1/2.  At this time last year, he was only saying 10-20 words and they were mostly prompted.  We had to teach Finn things that normally come easy to other point, to chew, to swallow, to roll over, to reach, to put in, to keep his hands open, and the list goes on.  These things did not come easily.  It was with every waking hour of working with Finn to make these strides and he hasn't stopped making them. 

We continue to spend our waking hours working with Finn on things most four year old's know.  Colors, the alphabet, eating properly with utensils, potty training and so on.  But, Finn can count to ten, he can ride his tricycle with no hands, he can brush his teeth by himself, and tickle his sister.  We are lucky that Finn can learn, that he wants to learn, and that he is learning.  It takes a ton of practice, patience, and sometimes tears to get there, but we do it together.

In times you really want to throw in the towel and say your child is just not getting it, don't stop.  Think of the word "red."  I have said the word "red" a million and a half times this year, but that millionth and a half time plus one, Finn said it on his own, independently, and correctly.  

1 comment:

  1. I remember the morning we walked into Cam's room and he was standing in his crib, looked at me and said "Bubbles." We'd worked for months to get him to make a b sound and it was such a shock to hear it!

    We are up in Chicago. Cam is 6 and has t9p, diagnosed in utero. Are you connected with anyone in this area, either through SOFT or the Trisomy 9 Yahoo Group? We are getting a bunch of trisomy 9 families together from all over the US and internationally in Chicago the weekend of June 21. I hope you can join us! Finn sounds very much like Camden and Luka, who is about 4.

    I just found your blog and can't wait to go through your archives.

    cris dot shepard at sbcglobal dot net