tag:blogger.com,1999:blog-5169651692820127570.post3563014635812708274..comments2023-05-09T06:04:16.986-04:00Comments on Finding Finnley's Voice: Finn and Trisomy 9pbgracioushttp://www.blogger.com/profile/16899072441788059161noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5169651692820127570.post-16845699398954700842019-11-29T06:46:09.184-05:002019-11-29T06:46:09.184-05:00Hello we are the parents of a 3 year old boy who h...Hello we are the parents of a 3 year old boy who has trisomy 9p. We live in France. Right now we don’t know what our son’s future will be. We want to talk to parents who are affected by this disease. lecombatdeloouka@gmail.comAnonymoushttps://www.blogger.com/profile/06398692584479016689noreply@blogger.comtag:blogger.com,1999:blog-5169651692820127570.post-15715250826879049252015-12-28T08:26:05.838-05:002015-12-28T08:26:05.838-05:00I am the mother of a 25 year old daughter w/trisom...I am the mother of a 25 year old daughter w/trisomy 9p. You have done a great job describing characteristics. It is amazing that needing to always hold something in the hands, having a super memory, showing superior skill in doing puzzles, having a high tolerance for pain, and really bad constipation can be common traits! But it is exactly ax you say for us also! Kind regards, JCAnonymoushttps://www.blogger.com/profile/16793631584653883984noreply@blogger.comtag:blogger.com,1999:blog-5169651692820127570.post-26131556070712338252015-12-28T08:25:06.163-05:002015-12-28T08:25:06.163-05:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/16793631584653883984noreply@blogger.comtag:blogger.com,1999:blog-5169651692820127570.post-24435517128244571042014-11-09T09:08:07.966-05:002014-11-09T09:08:07.966-05:00This type of information is hard to find. Our dau...This type of information is hard to find. Our daughter Marisa who is now 7 has trisomy 9 Mosaic syndrome. She is challenged with many of the same issues but worst. She is still not feeding herself, independently walking (can't balance) or talking. Do you know if hyperbaric chamber therapy has worked for children with this gene disorder? Also can you elaborate a little more on what therapies worked best for Finn. Thank you for any additional information you can provide. Steven and Michele, LouisianaAnonymoushttps://www.blogger.com/profile/18179861564979261743noreply@blogger.comtag:blogger.com,1999:blog-5169651692820127570.post-79137225916879319072012-01-29T21:21:16.824-05:002012-01-29T21:21:16.824-05:00Very interesting! This blog is going to be a great...Very interesting! This blog is going to be a great resource!!Anonymoushttps://www.blogger.com/profile/10740201852138319986noreply@blogger.com